Warning-a bit long and a bit personal. But, you guys are good people and I need to get this off my chest.
I'm over my wife's illness. For those who don't know (and I don't fault any one) my wife has struggled with a chronic illness that was thought to be Irritable Bowel Syndrome. Now, that diagnosis is really one of medical staff shrugging and going "Don't know" and saying she will suffer with it for the rest of her life. And it's painful to watch as her abdomen will cramp up for no reason, often times in reaction to triggers such as certain foods or stress or just lifting wrong. Suffice to say, she cannot work as she has to take random (and long) bathroom breaks some days.
Fast forward from diagnosis to about two months ago. A friend of ours discusses her symptoms and realize it might not be IBS but something called pelvic floor dysfunction, which sounds terrible but is fixable. So, she goes to a specialist (one of 40 in the country and happens to be in our town). He does an exam and determines that it isn't IBS-it's pelvic floor dysfunction, and endometriosis and adenomyosis. The later two are when uterine tissue is in the wrong place and gets super inflamed and causes extreme pain throughout the abdominal cavity.
So, hooray! We finally have an answer. Except, my wife is on Medicaid and Medicaid has basically decided that she is too young for the treatment, which is a hysterectomy-removal of the uterus. So, we have spent the last two months arguing with Medicaid to pay for something that could substantially improve her quality of life.
I'm over it. I'm tired of illness, of being a caregiver, of her being tired all the time and the one possible treatment is being denied.
tl:dr-chronic illness sucks for everyone, not just the patient.